About
My Story
My journey began the moment my 6-week-old son was diagnosed with a rare genetic disorder.
I still recall vividly the moment the doctors delivered the news, their words hanging heavy in the air as they informed us that he was one of only 32 children in the world with this condition. They had never actually diagnosed anyone with this condition but had read about it. The doctor told us he may never walk, talk, eat, or have a long life expectancy.
The doctor’s prognosis felt like a relentless storm, each word blurring into the next as I crumbled to the cold hospital floor, tears flowing freely as if they could wash away the pain. At that moment, time seemed to stand still. I can still close my eyes and see myself on the ground in a fetal position in shock. That single event altered the trajectory of my life forever. It changed the course of my life, my family’s life, and it opened my eyes to a world that I didn’t really know existed before my son.
As I shared my story with other families, I realized that there is no roadmap to raising a medically complex child, but there are so many unknowns and fears. And while this was uncharted territory for me, it became very clear to me early on that in order for my child to reach his full potential, I had to embark on this new motherhood journey with an open heart and mind. That was not possible until I turned my pain into purpose.
It’s taken me many years to get to a place of joy, with a bit of grief, but I am here to tell you there’s a better way. I want to guide and empower you as you navigate a new unknown motherhood journey and to overcome fears and embrace the boundless possibilities that lie ahead.
Why I do this?
Because I have walked in your shoes. It’s time to transform your pain into power and embrace the infinite possibilities ahead.
Are you ready to embark on this journey?